I wish I could tell you that everything is fine and nothing hurts today. But that would be a lie. Read More
I was lucky enough to find, by chance, a Fibromyalgia Support Group in my local city. I went to the last meeting this past Saturday and a member of the Canadian Pain Coalition, Lynn Cooper, was there to give a presentation on her experience with pain and what the role of the CPC is.
One thing that she said that struck me was that she identifies as a Person with Pain (PWP) as opposed to a patient. I’ve always been a proponent of person first language, stemming from my work with children with disabilities (autism, mainly), and have never thought of myself as anything other than Courtney. But now, I am not just referring to myself as a Person with Pain, but Pretty with Pain. Read More
Am I the only one who hates taking pain medication? Whether the pain relief comes in the form of a pill I take, a patch I wear, a cream I spread, or the various other methods that medication enters my body, sometimes it makes me feel like a failure. Like I should be tough enough to withstand this overwhelming distress, that most people would not believe is even possible. Read More
I’ve never been a person who particularly likes being told what to do. I guess this should have been an indicator that Guided Meditation wouldn’t really work for me.
Reading these words, written in this way, seems like something high school kids shout in a formed circle around two bloody-nosed kids who are roughing each other up to appear stronger, tougher, and more bad ass than the other. Looking back, those kids probably didn’t know what they were fighting for, or even about for that matter.
But I know what I am fighting every morning when I wake up. I know what I’m fighting against based on my symptoms and the many diagnoses in my overflowing medical binder. I have many reasons to keep going when I look in my husband’s eyes and my nephew’s brilliant smile. I never know what the day will bring or where this journey will take me, but the one thing I do know is that I’m a fighter.
And this life, with this body, and these diagnoses is how I know I’ve been called to fight. Read More
Good Morning, Friends!
I have updated my Spoonie Suggestions section so be sure to check it out!
If you’ve explored a bit of my site you would have come across the “What is a Spoonie?” post detailing what it is to refer to yourself as such.
I am a spoonie and as such I have found myself in some unusual situations with new ways of embarrassing myself or screwing up.