Sing Spoonie Songs

Good Morning, Loves!

* Please check out the Spoonie Suggestions and Song of the Week sections to see some new, updated posts! *

On my Tumblr blog I began editing these Disney songs in a Spoonie way! People have responded pretty well to them so I wanted to share them on my own domain!

 

  1. I’ve got doctors and meds a-plenty
    I’ve got canes and braces galore
    You want mobility aids?
    I’ve got twenty!

But who cares?
No big deal
I seem fine

I wanna be where the people are
I wanna be, wanna be them dancing’
Walking around on those – what do you call ‘em?
Oh – feet

And ready to know what the doctors know

Ask ’em my questions and get some answers
What’s this pain and why does it – what’s the word?
Hurt?

When’s it my turn?
Wouldn’t I love, love to explore that life out these walls?
Out of the beds
Wish I could be
Part of that world….

                                                             My version of “Part of Your World” Read More

Penguin Pain Control

Am I the only one who hates taking pain medication? Whether the pain relief comes in the form of a pill I take, a patch I wear, a cream I spread, or the various other methods that medication enters my body, sometimes it makes me feel like a failure. Like I should be tough enough to withstand this overwhelming distress, that most people would not believe is even possible. Read More

Why Guided Meditation Didn’t Work For Me

This article will be in the November issue of Vibrance Magazine, be sure to check it out!

I’ve never been a person who particularly likes being told what to do. I guess this should have been an indicator that Guided Meditation wouldn’t really work for me.

Amidst a major flare I decided to check out a Chronic Pain Workshop that was put on in The Arthritis Society in Canada. I sat in agony while they listed off what pain is and different strategies that could be used to manage it. I rolled my eyes like “yeah, whatever, I’ve tried that!”. Clearly I was a great listener and absolutely receptive to their ideas, not.

Read More

Fight! Fight! Fight!

Reading these words, written in this way, seems like something high school kids shout in a formed circle around two bloody-nosed kids who are roughing each other up to appear stronger, tougher, and more bad ass than the other. Looking back, those kids probably didn’t know what they were fighting for, or even about for that matter.

But I know what I am fighting every morning when I wake up. I know what I’m fighting against based on my symptoms and the many diagnoses in my overflowing medical binder. I have many reasons to keep going when I look in my husband’s eyes and my nephew’s brilliant smile. I never know what the day will bring or where this journey will take me, but the one thing I do know is that I’m a fighter.
And this life, with this body, and these diagnoses is how I know I’ve been called to fight.  Read More