That’s how many days after it’s been since the day I did something fun.
Before I get too far into this post, please be sure to check out the Spoonie Suggestions and Song of the Week pages for some fun updates!
Now back to the thing, or things, I did so many days ago that has since left me bedridden and praying for mercy… Read More
Hey, Chronic Friends!
Be sure to check out my newly updated Spoonie Suggestions page!
Today’s post is not as bright and shiny as I was hoping, but it is real. It is how I am feeling, and I’m sure some other people can relate. Here it goes..
No, I’m not lazy.
I’m not exaggerating my illnesses. Most days I’m downplaying them, if anything.
I realize that the last post wasn’t the cheeriest of spoonie thoughts but I want this website to represent the reality of chronic illnesses. I also realize that people want to connect and know that what they’re feeling is valid and normal (for all intents and purposes).
So, stepping away from the fears of a spoonie, I’m going to express my sunny side again. Read More
Good Morning, Loves!
* Please check out the Spoonie Suggestions and Song of the Week sections to see some new, updated posts! *
On my Tumblr blog I began editing these Disney songs in a Spoonie way! People have responded pretty well to them so I wanted to share them on my own domain!
But who cares?
No big deal
I seem fine
I wanna be where the people are
I wanna be, wanna be them dancing’
Walking around on those – what do you call ‘em?
Oh – feet
And ready to know what the doctors know
Ask ’em my questions and get some answers
What’s this pain and why does it – what’s the word?
Hurt?
When’s it my turn?
Wouldn’t I love, love to explore that life out these walls?
Out of the beds
Wish I could be
Part of that world….
My version of “Part of Your World” Read More
Am I the only one who hates taking pain medication? Whether the pain relief comes in the form of a pill I take, a patch I wear, a cream I spread, or the various other methods that medication enters my body, sometimes it makes me feel like a failure. Like I should be tough enough to withstand this overwhelming distress, that most people would not believe is even possible. Read More
I’ve never been a person who particularly likes being told what to do. I guess this should have been an indicator that Guided Meditation wouldn’t really work for me.
Reading these words, written in this way, seems like something high school kids shout in a formed circle around two bloody-nosed kids who are roughing each other up to appear stronger, tougher, and more bad ass than the other. Looking back, those kids probably didn’t know what they were fighting for, or even about for that matter.
But I know what I am fighting every morning when I wake up. I know what I’m fighting against based on my symptoms and the many diagnoses in my overflowing medical binder. I have many reasons to keep going when I look in my husband’s eyes and my nephew’s brilliant smile. I never know what the day will bring or where this journey will take me, but the one thing I do know is that I’m a fighter.
And this life, with this body, and these diagnoses is how I know I’ve been called to fight. Read More
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