Pretty with Pain

I was lucky enough to find, by chance, a Fibromyalgia Support Group in my local city. I went to the last meeting this past Saturday and a member of the Canadian Pain Coalition, Lynn Cooper, was there to give a presentation on her experience with pain and what the role of the CPC is.

One thing that she said that struck me was that she identifies as a Person with Pain (PWP) as opposed to a patient. I’ve always been a proponent of person first language, stemming from my work with children with disabilities (autism, mainly), and have never thought of myself as anything other than Courtney. But now, I am not just referring to myself as a Person with Pain, but Pretty with Pain. Read More

Penguin Pain Control

Am I the only one who hates taking pain medication? Whether the pain relief comes in the form of a pill I take, a patch I wear, a cream I spread, or the various other methods that medication enters my body, sometimes it makes me feel like a failure. Like I should be tough enough to withstand this overwhelming distress, that most people would not believe is even possible. Read More

Practical Positivity

When I began writing about my Chronic Pain Problems I used the username On the Bright Side of Courtney because my goal was positivity. I wrote for a website called Positivity in Pain and I smiled and laughed my way through these illnesses… for one post. And then I could not move past the sadness I was feeling. I was having a really hard time faking happiness when I wasn’t feeling that way, but that only made me more upset. I am a writer! I can write joyfully! Right? Not at that time. Read More

Accountability

There are so many unpredictable things about chronic illnesses. You never know when you’re going to have a good day, or even a day where getting out of bed seems feasible.

Sometimes the idea of talking on the phone is overwhelming enough to induce a panic attack and other times you just ache to hear the ringtone.

There are days where the isolation is maddening but you are overwhelmingly exhausted and unable to socialize.

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