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Oh The Things You’ll Miss

I’m Sorry!
Today’s not your day.
You’re not going anywhere!
Sit down and stay right there!

You have brains in your head.
That much is true.
But brain fog makes you doubt your IQ.
You’re on your own. Yet you need assistance.
This may be quite a sad existence.

You’ll look at Facebook posts from friends,
And see how their fun never ends
Their lives seem full of choices and opportunity
While yours is filled with immune system mutiny.

And you may not find any common ground
With people you used to hang around
Your life has been changed from the norm
It is like being altered from your original form.

But not all change is worthy of despair,
Because you have gained new insights to share.

Perspectives are altered as illnesses progress,
Managing medications and appointments in excess.
These allow you to grow in ways you couldn’t have expected,
A new experience with every hospital band collected.

And then your heart grows and grows
With each new spoonie you get to know
Ask questions and share your tale,
Of illness woes and medical fails

OH!
THE THINGS YOU’LL GAIN!

You’re on your way to chronic success!
You now have medical aids and Netflix to obsess!
You’ll join the ranks of chronic warriors
who never turn down a fight!

You won’t always enjoy this life,
You’ll cry tears of pain, exhaustion and fear..
But know you’re not alone in this battle,
Whatever you are going through, we are here.

The things you’ll miss are plenty,
From parties, concerts, and plays.
It seems unfair because it is.
But this is the chronic fighter way.
It’s not always the most fun, that’s for sure.
But what we lack in fun, we make up for in heart.
Sheer will, determination, sense of humor, and hope for a cure!

 

My revamped version of Dr. Seuess’ “Oh The Places You’ll Go”

Courtney

Courtney

Hey! My name is Courtney and I am a wife, a mom to a pup and cat, and I just happen to have a few chronic illnesses that have drastically changed my life. I've gained a brand new perspective of life and who I want to be while I face these new challenges. I am so excited about this new phase and meeting fellow Chronic Warriors! Please join me! Love and Gentle Hugs xx Courtney

2 thoughts on “Oh The Things You’ll Miss

  1. Beautiful! And so true! No matter how hard you try to stay positive, eventually the pain and fog and fatigue get you and cause anxiety and depression.
    I used to be a hard worker, always working, doing more than my fair share, helping others and finally landing my dream job that I had to let go of. I used to be so smart and quick and now I feel like my brain is deteriorating – so I love the part about the IQ. The whole thing.
    The bad stuff does make the good that much sweeter, the other spoonies, you guys have become my special family. We are connected by our struggle that no one else understands but us, and we have comfort in knowing we are not alone even when it feels like it.
    Idk if you’ve posted movie ideas to watch- I’ve gone through quite a few I’d like to make a list of myself that aren’t commonly seen as im sure many others have exhausted long ago the popular movies lol!

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