I realize that the last post wasn’t the cheeriest of spoonie thoughts but I want this website to represent the reality of chronic illnesses. I also realize that people want to connect and know that what they’re feeling is valid and normal (for all intents and purposes).
So, stepping away from the fears of a spoonie, I’m going to express my sunny side again.
When I am having an extra rough, pain-filled go, I make up stories with my husband, or in my own head if he’s not around.
We have a couple of story go-to’s. The first one, as you know, stemmed from my less-than-helpful experience with Guided Meditation. It centers around my love of penguins and every time I am in devastating pain we make up stories about where the penguins are and what type of trouble they’re causing. It usually helps take my mind off of the misery and makes me smile, even through the tears.
A more recent idea we’ve come up with is called The Island of Lost Spoons. It is a place where the hard working spoons go when they’re not giving us our strength/energy. We try to keep the spoon stories happy and not be angry at the spoons, because it’s not their fault they’re short staffed.
On the Island the spoons can swim, tan, play, and rest after working so hard to give us the best life possible. Sometimes, however, when the spoons have been depleted of energy and gone to the Island for reprieve, they miss their flight back and are unable to return and we’re without them for days at a time. Naughty spoon airlines.
I have sketched a photo of this Island, (and again, I am no artist, seriously), with shaky hands and tears in my eyes. Here it is:
So, if you’re having a day like my first post, maybe think about silly penguins or lazy spoons and remember that you’re not alone.